Fantastic News!

This morning Daylon had a checkup appointment with his cardiologist. And it couldn't have some at a better time since we have been anxiously awaiting the results of Daylon's second Holter session from over two weeks ago.

Dr. LeGras' medical assistant first had Daylon weighed. She weighed him in at 11 pounds 13 ounces! Dr. LeGras than came in and after giving Daylon a quick checkup (everything sounded perfect) I immediately asked about his Holter results; no SVT episodes! We. Are. So. Excited! What does this mean though exactly? It means that the combination of Digoxin and Propanolol are working well together at their current dosage. Dr. LeGras instructed us to continue administering the medications at their current dosage for at least another three months until Daylon's next appointment. He'll have another Holter session done at that time as well.

There were two other brief points of discussion.

First, with Daylon gaining weight and getting bigger shouldn't the dosage of his medications be bumped up for body weight to medication ratios? Dr. LeGras seemed confident that the combination of the medications at their current dosage are working fine and he doesn't want to tinker with it. And as Daylon continues to grow, and because the current medications are working, his body each day is 'growing' out of possible reoccurring SVT episodes hopefully encouraging us to wean the meds away as we go. Jeanne and I have been and will continue to monitor Daylon's heart rate and if we suspect SVT's are reoccurring we can immediately call Dr. LeGras and he'll see Daylon, evaluate, and bump the med dosages up if need be. Dr. LeGras reminded us again that even though the second Holter session showed no SVT's in that 24 hour period Daylon's little heart could still at any moment go into SVT. The results showed that Daylon and his heart are heading in the right direction but it is still obvious and vital we continue the process of appointments, Holter sessions and medications.

Second, Daylon will be two months old tomorrow. We have a pediatricians appointment next week and a vaccination schedule will most likely be determined. Dr. LeGras said there are no interactions between the Digoxin/Propanolol heart meds and vaccinations and said so without any worries, concerns or hesitations.

What a wonderful day to start our Tuesday! Praise the Lord for His blessings and healing hands!

As a side note Daylon and his bum have been making for a wicked liquid bazooka as of late! In the past few days he has managed to project and shower us with poo during diaper changes. It has been glorious! What can we do but laugh, and laugh we did, till we were crying! We can see immediate relief on Daylon's face. And I'm sure he likes watching us laugh over seeing our arms drip with smelly yellowish orange goo. Proud parents =)!

Big Smiles!

Daylon was so smiley all morning yesterday! I was able to capture a few on video. Enjoy!

Still waiting...

Almost three weeks ago, as part of his SVT monitoring and treatment, Daylon came home from his cardiologist with a Holter device. Holter devices capture EKG readings for a 24 hour period of time and in Daylon's case reveals how many SVT episodes he has in that period of time. This first Holter session revealed that he had had eight SVT episodes, not very encouraging at all. This meant that in addition to the Digoxin medication he was taking another medication, Propanolol, was prescribed.

After three days of taking the Propanolol four times a day another Holter session was done almost two weeks ago. The cardiologist was hoping that the additional medication would bring the number of episodes down, hopefully driving that number down to zero. Jeanne and I are little anxious, and worried to say the least, since we still haven't heard back about the results! We are praying Daylon and his little heart are indeed improving!

Here are links describing Digoxin and Propanolol. The short of it is is that Digoxin keeps the heart's electrical impulses at bay while the Propanolol is used for hypertension, for Daylon this means slowing his heart rate down just a little.

Photos!






Above photos were taken July 3rd. The last one is of Daylon and the Holter device. Poor guy!


Daylon meeting his Great-Grandpa Wood.